Every child deserves the opportunity to thrive beyond a neuroimmune diagnosis. Through education, advocacy, holistic wellness, and community, ROOTS is building a future where no family walks this journey alone.
Diana L. M. Saint Simon has spent her life redefining what is possible. Diagnosed with multiple sclerosis as a child, she refused to allow the diagnosis to dictate the limits of her future. Defying expectations, she graduated from high school and earned an associate degree in liberal arts, as well as bachelor’s degrees in theater and media studies. She continues to pursue advanced graduate education, with aspirations of obtaining both a master’s degree and a doctoral degree.
Diana journeyed across the country to California, where she built a career with one of the world’s leading airlines while embracing her greatest calling—becoming a devoted mother, advocate, and author whose words are rooted in hope, resilience, and purpose.
Through My Tiny Spotted Mind: Too Young for MS, Diana transforms her personal story into a message of courage for children, families, and anyone navigating life’s unexpected challenges. Her work extends beyond the page, reflecting a lifelong commitment to advocacy, education, and empowering others to see possibility where the world often sees limitation.
She believes that while illness may shape a chapter of our lives, it never defines the story we are capable of writing—and that the most extraordinary lives are often built by those who choose hope, one courageous step at a time.
MS entered my childhood,
but it never inherited my future.
DIANA L.M. SAINT SIMON
Founder, ROOTS Pediatric Neuroimmune Initiative
My symptoms began at eight years old, and I was diagnosed with pediatric Multiple Sclerosis at age ten, in 1999.
I know what it feels like to grow up navigating uncertainty, treatments, fear, and questions no child should have to answer alone.
ROOTS was created because every child deserves more than a diagnosis.
They deserve support, education, community, and the opportunity to flourish.
“MS entered my childhood, but it never inherited my future. ROOTS is how I help protect the futures of the children coming after me.”
— Diana L.M. Saint Simon
Founder, ROOTS Pediatric Neuroimmune Initiative
Helping families understand diagnosis, treatment options, resources, and support systems.
Nutrition, movement, emotional wellness, and healthy lifestyle education.
Amplifying the voices of children living with neuroimmune conditions.
Books, storytelling, art, and empowerment through creative outlets.
“My name is Diana L.M. Saint Simon. My symptoms began at eight years old, and I was diagnosed with pediatric MS at age ten, in 1999. For decades, I searched for answers, hope, and quality of life. Today, I’m launching ROOTS so children and families never have to walk that journey alone.”
I have known of MS! But never in this full extent! My heart for this author has me constantly reading what next... my reality on pediatric MS has my mind blown. So raw and graceful this book has been written. I'm honored to be in the presence of acknowledgment of what MS has stemmed from.
Very well written. It is a useful source for information about this autoimmune disease, and the benefits of being motivated.
Excellent
She let the reader understand the importance of a strong willingness to withstand and what a strong support system can provide.
Great Read Of this Young lady and genuine access into “My Tiny Spotted Mind”. Brilliantly done!!
ROOTS exists because every child deserves more than a diagnosis. Every child deserves the opportunity to thrive beyond a neuroimmune diagnosis—not beyond its reality, but beyond its authority to define the child’s entire future.
Through education, advocacy, holistic wellness, caregiver support, and community, ROOTS is building a future where no child or family has to navigate this journey alone.
Rooted in Hope
Growing Beyond Diagnosis